Patient and family care

Are you looking for help for yourself or for a family member who suffers from a rare disease or do you suspect that you may have one? Do you have doubts if your disease ir rare, have you been on a healthcare journey for years and still do not have a diagnosis? At INDEPF, we are here to help you. Our Information and Orientation Service (SIO) will be at your disposal to guide you and answer your questions

Let me explain the process of assistance and what our team of professionals at INDEPF can offer you

1. Contact through any means of communication

You can contact us through any of the available means we have for patient and family care. Our team of professionals from the Information and Guidance Service (SIO) will be at your disposal to guide you and answer all your questions

Free call to our numer 900 831 691

Easily and quickly, through WhatsApp

You can contact us through all our social media channels or vía email

Through our contact form

2. Psychosocial intervention

We know that the diagnosis of a rare disease can be very difficult and stressful for you and your family. That’s why you will be attended by a professional team that will provide psychological support to help you manage your emotions and face the situation in the best possible way

3. Support in the diagnosis, treatment, and management of the disease

We can provide you with all the information and guidace you need to understand your illness, as well as the treatment and management of symptoms in the most effective way possible

4. Information about resources, services, and reference centers

We are committed to providing you with all the information you need to access the resources and services that can help you manage your condition. We provide you with information about reference centers, support groups, aid and subsidies, professionals, and more

5. Support networks and contact with other patients and families

We know that you are not alone in this situation. At INDEPF, we can connect you with other patients and families who are in the same situation as you and can advise and guide you. We provide information about associations and we will help you establish contact with other people who can provide you with support and undestanding

6. Assistance in accessing treatments

We help you access the most appropriate treatments by coordinating and communicating with the appropiate healthcare professionals. We provide information on available treatments and act as a bridge with the referral hospital

7. Guidance for disease management

Our team provide guidance and support so that you can manage your illness effectively and independently. We will provide you with information on healthy habits, symptom and complication management, and teach you how to be an active and well-informed patients

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