Here you can find all the information about the actions and events we organize and participate in to raise awareness about rare diseases.

Our events are designed to engage the community, create awareness about the need to support people with rare diseases, and promote solidarity and inclusion. Additionally, we aim to educate and raise awareness about rare diseases. We believe it is important for society to know the challenges that people with rare diseases and their families face, as well as the needs they have. Through our events, we hope to help break down barriers and create a more inclusive world for all