Actions and events

Here you can find all the information about the actions and events we organize and participate in to raise awareness about rare diseases.

Our events are designed to engage the community, create awareness about the need to support people with rare diseases, and promote solidarity and inclusion. Additionally, we aim to educate and raise awareness about rare diseases. We believe it is important for society to know the challenges that people with rare diseases and their families face, as well as the needs they have. Through our events, we hope to help break down barriers and create a more inclusive world for all

Book presentation "Honderos" by Fernando Lamata Cotanda

Fascinating talk with the author of "Honderos", a novel written by Fernando Lamata Cotanda, former Minister of Health and Human Services of the Regional Government of Castilla-La Mancha

Exhibition Vaccinating

Discover the "Art of Being a Pharmacist" with Dr. Aquilino Corral and Ms. Ana López Casero, and learn about "Antibiotic Resistance" with Ms. Raquel Carnero and Mr. Luis Marcos, two fascinating and educational talks.

Debate on "Healthcare in Castilla-La Mancha and Rare Diseases"

Debate with the participation of political parties

Delivery of EPF medical healthcare award

Delivery ceremony of the EPF Medical Health Award to Dr. Mª Luz Ruiz-Falcó Rojas at the Niño Jesús University Hospital

Rare Disease Day 2022 Yearbook

Annual report on the World Rare Disease Day celebrated on February 28, 2022

Campaign #SomosINDEPF

How to participate in the draw of our solidarity campaign #SomosINDEPF

Our healthcare system in rare diseases (EPF)

Awareness and Workday for Rare or Uncommon Diseases at Virgen del Rocío University Hospital in Seville

Extraordinary woman, special woman

Talk and discussion in which we had the participation of extraordinary and rare women

XIV Premios Poco Frecuentes

We celebrate our XIV edition of the Rare Diseases Awards at the Royal Spanish Football Federation

Do you want to join us?