This debate brought together representatives from various political parties running in the May 28th elections in Castilla-La Mancha.
The Institute for Research and Social Development of Rare Diseases (INDEPF) and New Medical Economics jointly conducted the debate titled “Healthcare and the present situation in Castilla-La Mancha: a perspective on rare diseases.” The event took place today at 10:00a.m. in the INDEPF Hall, located at their headquarters in the Casa de las Asociaciones in Campo de Criptana.
The debate featured prominent healthcare representatives from the major political parties participating in the May 28th elections in Castilla-La Mancha: Juanjo García, Coordinator of Health and Consumer Affairs for the Popular Party of Castilla-La Mancha, José Antonio Contreras, Health Spokesperson for the Spanish Socialist Workers’ Party of Castilla-La Mancha, and Esther Trujillo, candidate for the Cortes from Ciudad Real and Izquierda Unida. They shared their perspectives and proposalas on healthcare matters.
Under the moderation of José María Martínez, Executive President of New Medical Economics, a space for constructive dialogue was created to address the healthcare challenges and perspectives in the community of Castilla-La Mancha, with a particular emphasis on rare diseases.
The participants highlighted the importance of improving the care and support for patientes with rare diseases, acknowledging the challenges these conditions pose to the healthcare system. Concrete proposals were presented during the debate to strengthen early diagnosis, access to innovative treatments, and the implementation of comprehensive support policies.
The event had a wide attendance of healthcare professionals, researchers, patient organization representatives, and other relevant individuals in the healthcare field. The diversity of perspectives enriched the debate and fostered and enriching exchange of ideas.
The Institute for the Development and Promotion of Helthcare and New Medical Economics are pleased with the outcome of this important debate, which has raised awareness about the significance of rare diseases and laid the groundwork for future actions and collaborations for the benefit of the citizens of Castilla-La Mancha.